Publications

This page contains links to publications produced by members of the AIIHPC PCRN and ECRF.

Spotlight on Publications

Palliative Care and Heart Failure Services: Mapping National Data to Inform Policy and Service Provision.

Although palliative care is recommended for people with heart failure in various national and international guidelines, there remains no universally adopted standard on how and when to integrate it into heart failure care. This study aims to map the palliative care services available for people within 1 country in the United Kingdom, and to determine how palliative care access for people with heart failure is implemented across the country. To read more click here. Authored by ECRF member Ashleen Crowe from Queen’s University Belfast, PCRN member Professor Joanne Reid from Queen’s University Belfast, PCRN member Professor Loreena Hill from Ulster University, ECRF member Katarzyna A. Patynowska from Ulster University, and PCRN member Tracey McConnell from Queen’s University Belfast.

Assessing the cost-effectiveness of two psychoeducational interventions for people with cancer and their caregivers: An economic evaluation of the multi-country DIAdIC trial.

Cancer is among the largest drivers of morbidity and mortality worldwide, causing physical, psychological and emotional strain for both patients and caregivers. The authors estimated the cost-effectiveness of two dyadic psychoeducational interventions (FOCUS+ and iFOCUS) compared to usual care for people with advanced cancer and their primary family caregiver. To read more click here. Authored by PCRN members Dr Peter May from Trinity College Dublin, Dr Samantha Smith from Trinity College Dublin, Professor Suzanne Guerin from University College Dublin, Professor Kevin Brazil from Queen’s University Belfast, Charles Normand from Trinity College Dublin, and their colleagues.

Exploring engagement with a web-based self-directed psychoeducational program for advanced cancer patients and their caregivers (iFOCUS): A sub study analysis of the DIAdIC trial.
Supporting psychoeducational functioning for advanced cancer patients and informal caregivers can be challenging. Self-managed digital interventions offer a possible cost-effective alternative but often face low engagement. The aim of this study was to understand engagement with the iFOCUS intervention (a dyadic psychoeducational digital intervention designed to be completed simultaneously by patients with advanced cancer and their informal caregiver) and why it failed to improve the expected outcomes. To read more click here. Authored by PCRN members Dr Monika Pilch, Dr Michael Connolly, Dr Paul D’Alton, and Prof Suzanne Guerin from University College Dublin, Prof Philip J. Larkin from Lausanne University Hospital & University of Lausanne, and Dr Peter May from Trinity College Dublin, and their colleagues.

Healthcare Utilisation in Ageing Adults With Intellectual Disability: Longitudinal Evidence From Five Waves of IDS-TILDA.

Adults with intellectual disability are living longer and ageing with more illness. This impacts healthcare utilisation. Yet little is known about how healthcare utilisation changes over time as this population ages. This study aims to examine trends in healthcare utilisation and health conditions among older Irish adults with intellectual disability with a particular focus on how sociodemographic and clinical characteristics are associated with healthcare utilisation over time. To read more click here. Authored by PCRN member Dr Martin McMahon, and Prof Mary McCarron from Trinity College Dublin, and their colleagues.

2026 Publications

“Golden” moments and more in grief talk: Healthcare professionals’ approaches to discussing loss and grief with parents of children with severe neurological impairment.

Brennan E, Guerin S.

Sequencing AI Automation and Data Interoperability in Oncology Using a Scenario-Planning Framework Coupled With Discrete-Event Simulation: Proof-of-Concept Study.

May P, Brookman-May SD, Garrahy E, von Büren J.

Genetic Drivers of Sensitivity or Resistance to RAS(ON) Multi-Selective Inhibitors in NRAS-Mutated Melanoma.

Foth M, Kim W, O’Toole K, Murphy B, Justo-Garrido M, Boggaram S, Ghazi P, Brennan E, Wright MI, Shepherd T, Cortes-Sanchez E, Wang Y, Roth JA, Rees MG, Ronan MM, Jiang J, Wasko UN, Jiang A, Becker C, Deacon DC, Holmen SL, VanBrocklin MW, Hu-Lieskovan S, Kinsey CG, Russell JS, Hegde A, Garrido-Laguna I, Holderfield M, Singh M, McMahon M.

Improving the Understanding of Late Effects of Testicular Cancer in Adolescent and Young Adult Survivors:

TRANSCEND-XR.Saab MM, Hegarty J, Gleeson JP, Murphy D, McHugh S, Shiely F, Murphy A, Kirby A, Korfage IJ, Terhaard S, van der Heide A, Sivesgaard J, Seidler MK, Patrikidou A, Ježek D, Corrigan L, Sheehan PK, Raggi D, Reid A, Chovanec M, Gianntempo P, Gietema JA, van der Feen JF, Lupiáñez-Villanueva F, Roca-Umbert A, Reid J, Alves P, Soares J, Galvin K, Kubo M, O’Malley M.

What outcomes are important to families with a lived experience of stillbirth? A qualitative study to inform the development of a core outcome set for stillbirth care.

Bakhbakhi D, Burden C, Davies A, Fraser A, Siassakos D, Lynch M, Timlin L, Duffy JMN, Redshaw M, Dangerfield H, Heazell AEP, Hinton L; iCHOOSE Collaborative Group.PLoS One.

Risk factors associated with nursing-sensitive adverse events in older hospitalised patients: A retrospective chart review.

Connolly A, Staines A, Matthews A, Unbeck M, Bail K, Kirwan M.

Consideration of Oral Health Within Guidelines and Policy Documents Focused on Nutritional Status and Dietary Intake for Older Adults in Care Homes in the UK: A Scoping Review.

Makino S, Woodside J, Sallam A, McCorry N, Harvey M, Heilmann A, Lappin C, McEvoy C, Mitchell G, Watson S, O’Neill C, Tsakos G, Brocklehurst P, McKenna G.

Unmet cancer rehabilitation needs and access to survivorship services across the cancer continuum.

Guinan E, Algeo N, Fenton A, Herbst J, Mulgrew C, Sheill G, Eissa G, Hanrahan A, O’Brien C, Wade S, Enright A, Kennedy MJ.

Key characteristics of palliative care integration in intensive care units (ICUs): A scoping review.

King Y, May P, Whyte B, Tiernan E, Brady AM.

Nutritional Interventions in Advanced Cancer: Scoping Review.

Aktas A, Thomas S, Barrett M, Sui J, Waldman J, Kenny C, Eustice-Cook J, Kadakia KC, Walsh D.

The Use of Patient-controlled Analgesia for Children Requiring Symptom Management at End of Life: A Scoping Review.

Hanna R, Hasson F, Beck E, Keeney S.

A Multinational Association of Supportive Care in Cancer and International Society of Oral Oncology Clinical Practice Statement: Management of social eating and drinking challenges in adults with cancer.

Beauplet B, Semple C, Dornan M, Verdonck-de Leeuw I, Amano K, Choi A, Moore E, Ninfa A, Jansen F, Dean DR, Kouri M, Del Fabbro E, Elad S, Koczwara B.

2025 Publications

What are the unmet needs in people affected by dementia? A scoping review of reviews.

Koh WQ, Roes M, de Vugt M, Sezgin D, Gonçalves-Pereira M, Müller N, Diaz A, Casey D, Ingram C, Walden AK, Thyrian JR, Neal D, Comas A, Hopper L.

The cost of drug repurposing: parallel economic evaluation of mirtazapine for severe breathlessness in the multinational BETTER-B trial.

May P, Normand C, Oluyase AO, Smith S, Brown ST, Maddocks M, Costantini M, Bajwah S, Kahnert K, Simon ST, Ryan K, Currow DC, Johnson MJ, Hart SP, Krajnik M, Tanzi S, Bolton CE, Janowiak P, Turola E, Jolley CJ, Mather H, Murden G, Ghirotto L, Farsides B, Brown JM, Higginson IJ; BETTER-B consortium.

The Impact of Dietary Intake and Nutritional Status on the Oral Health of Older Adults Living in Care Homes: A Scoping Review.

Sallam A, McCorry NK, Harvey M, Heilmann A, Lappin C, McEvoy C, Mitchell G, Watson S, O’Neill C, Tsakos G, Woodside J, Brocklehurst P, Campbell KBD, McKenna G.

Evaluating portal-enabled elicitation of patients’ health-related values in solid tumor oncology: A qualitative content analysis.

Sha C, Santos E, Gilliland J, Lynch KA, Rosa WE, Nelson JE, Epstein AS.

Perspectives of healthcare professionals on the purpose, design and content of a health communication passport for stroke.

O’ Leary N, Barrett A, Kelly H.

A LangChain-based pipeline for one-shot synthetic text generation using generative pre-trained transformers in palliative care research.

Ronan I, Crowley P, Rombouts E, Cornally N, Saab MM, Murphy D, Tabirca S.J

Multimorbidity patterns in Irish adults ageing with and without an intellectual disability using network analysis and association rules: A comparative analysis using data from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA).

Ryan C, Hernández B, Burke E, McCallion P, McCarron M.

Adherence to guideline-directed medical treatments in heart failure. A scientific statement of the Heart Failure Association (HFA) of the ESC and the ESC Working Group on Cardiovascular Pharmacotherapy.

Savarese G, Lindberg F, Cannata A, Adamo M, Ambrosio G, Ameri P, Anker MS, Bäck M, Bayes-Genis A, Ben Gal T, Braunschweig F, Chioncel O, D’Elia E, El-Tamimi H, Filippatos G, Girerd N, Hill L, Jankowska E, Khunti K, Lewis BS, Moura B, Amir O, Paolillo S, Piepoli M, Shehab A, Simpson M, Skouri H, Stolfo D, Tocchetti CG, Vitale C, Volterrani M, von Haehling S, Wassmann S, Yilmaz MB, Kaski JC, Dobrev D, Metra M, Rosano.

The experience of loneliness in adults with acquired brain injury: a qualitative systematic review.

Muir-Little A, Berry E, Rauch R, Graham-Wisener L.

Determinants of the implementation, integration, and sustainability of new non-professionally affiliated psychosocial support roles: a scoping review.

Fulham-McQuillan H, Murphy M, Hilliard C, Sheaf G, Brenner M, Higgins A.

Health Literacy, Self-Management and Patient-Reported Outcomes in Prostate Cancer Survivors: A Mixed Methods Systematic Review.

Sheehan S, Bernués-Caudillo L, de Brún A, Drury A.

The Clinical Utility of Real-Time Patient-Reported Outcomes in Cell Therapy Recipients.

Meehan KR, Doherty JR, King JR, Caldon KL, Hayes CA, Hill JM, Lizcano RA, Holthoff MM, O’Donnell EA, Mills P, Zhao W, Holt KR, Nelson EC, Tosteson ANA, Van Citters AD.

2024 Publications

Does a palliative medicine service reduce hospital length of stay and costs in adults with a life-limiting illness?-a difference-in-differences evaluation of service expansion in Ireland.

Matthews S, Hurley E, Johnston BM, Kane P, Ryan K, Tiernan E, Normand C, May P.

Place of Death for Adults Receiving Specialist Palliative Care in Their Last 3 Months of Life: Factors Associated With Preferred Place, Actual Place, and Place of Death Congruence.

Smith S, Brick A, Johnston B, Ryan K, McQuillan R, O’Hara S, May P, Droog E, Daveson B, Morrison RS, Higginson IJ, Normand C.

Do doctors appreciate that social isolation and loneliness are health issues?

Lawlor B, O’Sullivan R, Leavey G, Lubben J.

A National Evaluation of Undergraduate Nursing and Midwifery Curricula.

Ryder M, Browne F, Curtin M, Connolly M, Furlong E, Geraghty S, Larkin J, Prendergast M, Meegan M, Brenner M.

Using nominal group technique to compare patients’ and clinicians’ perspectives on symptoms in multiple myeloma to inform the development of a self management tool for patients with relapsed myeloma.

Cormican O, Dowling M.

Improving meaningful activity and meaningful engagement for residents in long-term care settings.

Bradley R, Ryan A, Penney S.

Good quality end-of life care for people with an intellectual disability: A critical interpretive synthesis protocol.

Haigh M, McCarron M, McCallion P, Pavithra P, McMahon M.

From the ground up: stakeholders’ representations of the Irish longitudinal study on ageing (TILDA).

Üzar-Özçetin YS, Connolly M, Frawley T, Drennan J, Timmins F, Barnard M, Blake C, Di Placido M, Donnelly S, Doyle G, Fealy G, Fitzgerald K, Gallagher P, Guerin S, Mangiarotti E, McNulty J, Mucheru D, O’ Neill D, O’ Donnell D, Ryder M, Segurado R, Stokes D, Wells J, Čartolovni A.

Direct healthcare costs in the first 2 years of life: A comparison of screened and clinically diagnosed children with cystic fibrosis – The Irish comparative outcomes study of CF (ICOS).

Somerville R, Fitzgerald C, Segurado R, Kapur K, George S, Bhardwaj N, Linnane B, O’Ceilleachair A, Staines A, Fitzpatrick P.

What Helps or Hinders End-of-Life Care in Adult Intensive Care Units in Saudi Arabia? A Mixed-Methods Study Protocol.

Almalki N, Boyle B, O’Halloran P.

Exploring the supportive care needs of families affected by pancreatic cancer: a mixed-methods study protocol.

Anderson T, Prue G, Graham-Wisener L, McLaughlin S, Mitchell G.

Exploring the experiences of GPs in establishing and operating the chronic disease management programme in clinical practice in Ireland. A qualitative study.

Buckley S, O’ Flynn J, Foley T.

2023 Publications

High flow nasal cannula versus noninvasive ventilation in the treatment of acute hypercapnic respiratory failure: A systematic review and meta-analysis

Fahey AC, O’Connell M, Cornally N, Saab MM.

A human rights-based approach

McIlfatrick S.

Circadian rhythm disorders in patients with advanced cancer: a scoping review

Gouldthorpe C, Power J, Davies A.

Informal caregivers’ experiences of transitioning during end-of-life care-A scoping review

McCarthy B, Timmins F, Eustace-Cook J, Connolly M.

Interventions to improve the appropriate use of polypharmacy for older people

Cole JA, Gonçalves-Bradley DC, Alqahtani M, Barry HE, Cadogan C, Rankin A, Patterson SM, Kerse N, Cardwell CR, Ryan C, Hughes C.

Supporting family carers in general practice: a scoping review of clinical guidelines and recommendations

Cronin M, McLoughlin K, Foley T, McGilloway S.

Vital Signs in Palliative Care: A Scoping Review

Power J, Gouldthorpe C, Davies A.

Unmet care needs of women who have undergone breast cancer surgery: A scoping review

Ke Q, Timmins F, Furlong E, Stokes D.

Taste disturbance in patients with advanced cancer: a scoping review of clinical features and complications

Hannon M, Shaw A, Connolly M, Davies A.

Dementia research in Ireland: What should we prioritise?

Rogan C, Rock B, Begley E, Boland B, Brazil K, Diaz-Orueta U, Donnelly S, Foley M, Foley T, Hannigan C, Hopper L, Keogh F, Lawlor B, Leroi I, O’Neill C, O’Philbin L, Pertl M, Trépel D, Kennelly S.

What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature

Neylon K, Condren C, Guerin S, Looney K.

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Kelly R, Gordon P, Thompson R, Semple C.

2022 Publications

Psychometric validation of the death literacy index and benchmarking of death literacy level in a representative uk population sample

Graham-Weisner L, Toner P, Leonard R, Groarke JM.

Interventions for interpersonal communication about end of life care between health practitioners and affected people

Ryan RE, Connolly M, Bradford NK, Henderson S, Herbert A, Schonfeld L, Young J, Bothroyd JI, Henderson A.

Advanced breast cancer education for cancer nurses: A systematic review

Drury A, Dowling M, Diez de Los Rios de la Serna C, Erdem S, Aroyo V, Wiseman T, Bağçivan G.

Hospital-Based Palliative and End-of-Life Care in the COVID-19 Pandemic: A Scoping Review

Connolly M, Bell M, Lawler F, Timmins F, Ryder M.

Psychosocial vulnerability among carers of persons living with a chronic illness: A scoping review

Cormican O, Meskell P, Dowling M.

Impact analysis of heart failure across European countries: an ESC-HFA position paper

Rosano GMC, Seferovic P, Savarese G, Spoletini I, Lopatin Y, Gustafsson F, Bayes-Genis A, Jaarsma T, Abdelhamid M, Miqueo AG, Piepoli M, Tocchetti CG, Ristić AD, Jankowska E, Moura B, Hill L, Filippatos G, Metra M, Milicic D, Thum T, Chioncel O,

Consideration of Symptom Management in Advanced Heart Failure

Connolly M, Ryder M.

Conversations in dementia with Lewy bodies: Resources and barriers in communication

Lindeberg S, Müller N, Samuelsson C.

Experiences Related to Patients and Families’ Expression of Spiritual Needs or Spiritual Support Within Healthcare Settings During the COVID-19 Pandemic: A Scoping Review

Connolly M, Timmins F.

Providing Spiritual Care to In-Hospital Patients During COVID-19: A Preliminary European Fact-Finding Study

Timmins F, Connolly M, Palmisano S, Burgos D, Juárez LM, Gusman A, Soriano V, Jewdokimow M, Sadłoń W, Serrano AL, Caballero DC, Campagna S, García-Peñuela JMV.

Living through liminality? Situating the transitional experience of parents of children with mucopolysaccharidoses

Somanadhan S, Brinkley A, Larkin PJ.

Rationalising Antipsychotic Prescribing in Dementia (RAPID) complex intervention: A mixed-methods feasibility intervention study

Walsh KA, Byrne S, O’Riordan A, McSharry J, Browne J, Irving K, Hurley E, Timmons S.

2021 Publications

Interviewing as a vehicle for theoretical sampling in grounded theory. International Journal of Qualitative Methods

Foley G, Timonen V, Conlon C, Elliott O’Dare C.

Perceptions of fatigue and fatigue management interventions among people with multiple sclerosis: a systematic literature review and narrative synthesis

Míde Power, Nora Arafa, Anke Wenz, Geraldine Foley

Mindfulness as a well-being initiative for future nurses: a survey with undergraduate nursing students

Veigh CM, Reid J, Carswell C, Ace L, Walsh I, Graham-Wisener L, Rej S, Potes A, Atkinson K, Edginton T, Noble H.

Developing Guidance on Implementing Volunteer-Led Intradialytic Arts Activities in Haemodialysis Units

Wilson A, Carswell C, Noble H.

Re: cancer-related fatigue-pharmacological interventions: systematic review and network meta-analysis

Taheny K, Johnston B, Ryan K.

Corrigendum to ‘Initiating advance care planning on end-of-life issues in dementia: Ambiguity among UK and Dutch physicians’ [Archives of Gerontology and Geriatrics 65 (2016) 225-230/AGG 3314]

Van der Steen JT, Galway K, Carter G, Brazil K.

Successful implementation of a trans-jurisdictional, primary care, anticipatory care planning intervention for older adults at risk of functional decline: interviews with key health professionals

Corry DAS, Carter G, Doyle F, Fahey T, Gillespie P, McGlade K, O’Halloran P, O’Neill N, Wallace E, Brazil K.

Medical management of malignant bowel obstruction in patients with advanced cancer: 2021 MASCC guideline update

Davis M, Hui D, Davies A, Ripamonti C, Capela A, DeFeo G, Del Fabbro E, Bruera E.

Mindfulness-Based Interventions for Undergraduate Nursing Students in a University Setting: A Narrative Review

McVeigh C, Ace L, Ski CF, Carswell C, Burton S, Rej S, Noble H.

Living through liminality? Situating the transitional experience of parents of children with mucopolysaccharidoses

Somanadhan S, Brinkley A, Larkin PJ.

Hospital-Based Palliative and End-of-Life Care in the COVID-19 Pandemic: A Scoping Review

Connolly M, Bell M, Lawler F, Timmins F, Ryder M.

Resistance exercise and nutritional interventions for augmenting sarcopenia outcomes in chronic kidney disease: a narrative review

Noor H, Reid J, Slee A.

2020 Publications

Confused about theoretical sampling? Engaging theoretical sampling in diverse grounded theory studies

Conlon C, Timonen V, Elliott O’Dare C, O’Keeffe S, Foley G.

The Heart of Living and Dying: Upstreaming Advance Care Planning into Community Conversations in the Public Domain in Northern Ireland.

Mc Kenna D, O’Shea J, Tanner L.

Health system foundations for Sláintecare implementation in 2020 and beyond – co-producing a Sláintecare Living Implementation Framework with Evaluation: Learning from the Irish health system’s response to COVID-19. A mixed-methods study protocol [version 1; peer review: 2 approved]

Burke S, Thomas S, Stach M, Kavanagh P, Magahy L, Johnston BM, Barry S.

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland [version 2; peer review: 2 approved]

Somanadhan S, Nicholson E, Dorris E, Brinkley A, Kennan A, Treacy E, Atif A, Ennis S, McGrath V, Mitchell D, O’Sullivan G, Power J, Lawlor A, Harkin P, Lynch SA, Watt P, Daly A, Donnelly S, Kroll T.

Linking death registration and survey data: Procedures and cohort profile for The Irish Longitudinal Study on Ageing (TILDA) [version 2; peer review: 3 approved]

Ward M, May P, Briggs R, McNicholas T, Normand C, Kenny RA, Nolan A.

Projecting future health and service use among older people in Ireland: an overview of a dynamic microsimulation model in The Irish Longitudinal Study on Ageing (TILDA) [version 2; peer review: 2 approved]

May P, Normand C, Matthews S, Kenny RA, Romero-Ortuno R, Tysinger B.

Remembering people with dementia during the COVID-19 crisis [version 2; peer review: 4 approved]

O’Shea E.

Resource allocation decision-making in dementia care with and without budget constraints: a qualitative analysis [version 2; peer review: 2 approved]

Keogh F, Pierse T, O’Shea E, Fitzgerald C, Challis D.

Family carers’ perspectives of the Alzheimer Café in Ireland [version 2; peer review: 4 approved]

Teahan Á, Fitzgerald C, O’Shea E.

Health inequities in unscheduled healthcare for children with intellectual disabilities in Ireland: a study protocol [version 2; peer review: 2 approved]

Nicholson E, Doherty E, Somanadhan S, Guerin S, Schreiber J, Bury G, Kroll T, Raley M, McAuliffe E.

Approaches to the initiation of life-sustaining technology in children: A scoping review of changes over time

Alexander D, Eustace-Cook J, Brenner M.

The core features and outcomes of a specialised camp programme for children with life-limiting conditions and their families: A qualitative multi-perspective approach

Mulligan S, Guerin S, McKiernan A, Brown A, Hartnett M, Gray D, Kiernan G

2019 Publications

Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland

Scott D, Hudson P, Charnley K, Payne C, Westcott G.

Is Inpatient Hospice Care Clinically Effective? Using Phase of Illness to Evaluate Care Outcomes for Patients Admitted to a Specialist Palliative Care Unit in Ireland

Lucey M, O’Reilly M, Currow D, Eagar K, Walsh D, Conroy M, Twomey F, O’Reilly V, Doherty M, Coffey S, Sheridan J, Moran S.

Examining the support needs of older male spousal caregivers of people with a long-term condition: A systematic review of the literature

Fee A, McIlfatrick S, Ryan A.

The Role, Education, and Experience of Health Care Assistants in End-of-Life Care in Long-Term Care: A Scoping Review

Cronin U, McCarthy J, Cornally N.

Advance care planning in COPD: guidance development for healthcare professionals

Meehan E, Sweeney C, Foley T, Lehane E, Kelleher A, Hally R, Shanagher D, Korn B, Rabbitte M, Detering K, Cornally N.

Communication between primary and secondary care: deficits and danger

Dinsdale E, Hannigan A, O’Connor R, O’Doherty J, Glynn L, Casey M, Hayes P, Kelly D, Cullen W, O’Regan A.

Measuring adherence to therapy in apparent treatment-resistant hypertension: a feasibility study in Irish primary care

Hayes P, Casey M, Glynn LG, Molloy GJ, Durand H, O’Brien E, Dolan E, Das K, Newell J, Finn D, Harhen B, Conneely A, Murphy AW.

Intensive home care supports, informal care and private provision for people with dementia in Ireland

Carter L, O’Neill S, Keogh F, Pierce M, O’Shea E.

Key stakeholders’ perspectives on the development of a national transfer document, for older persons, when transferring between the residential and acute care settings: A qualitative descriptive study

O’Reilly P, O’Brien B, Graham MM, Murphy J, Barry L, Doody O, Fahy A, Hoey C, Kiely M, Lang D, Meskell P, O’Doherty J, O’Keefe J, Tuohy D, Coffey A.

The need for a specific definition of cardiac cachexia

Carson MA, Reid J, Hill L, Fitzsimons D.

Assessing the impact of dementia inclusive environmental adjustment in the emergency department

Bracken-Scally M, Keogh B, Daly L, Pittalis C, Kennelly B, Hynes G, Gibb M, Cole N, McMahon CG, Lawlor B, McCarron M, Brady AM.

Examining constipation assessment and management of patients with advanced cancer receiving specialist palliative care: a multi-site retrospective case note review of clinical practice

McIlfatrick S, Muldrew DHL, Beck E, Carduff E, Clarke M, Finucane A, Graham-Wisener L, Larkin P, McCorry NK, Slater P, Hasson F.

2018 Publications

Delirium in adult cancer patients: ESMO Clinical Practice Guidelines

Bush S, Lawlor P, Ryan K, Centeno C, Lucchesi M, Kanji S, Siddiqui N, Morandi, A, Davis D, Laurent M, Schofield N, Barallat E, Ripamonti C.

Condition-Specific Pamphlets to Improve End-of-life Communication in Long-term Care: Staff Perceptions on Usability and Use

Sussman T, Kaasalainen S, Lee E, Akhtar-Danesh N, Strachan PH, Brazil K, Bonifas R, Bourgeois-Guérin V, Durivage P, Papaioannou A, Young L.

International reflections on caring for people with advanced dementia

Yumoto Y, Kernohan WG, Morioka N, Ogata Y.

Providing care for a person with late-stage dementia at home: What are carers’ experiences?

Dempsey L, Dowling M, Larkin P , Murphy K.

Ethical issues in nursing home palliative care: a cross-national survey

Muldrew DHL, Kaasalainen S, McLaughlin D, Brazil K.

A Scoping Review to Map Empirical Evidence Regarding Key Domains and Questions in the Clinical Pathway of Delirium in Palliative Care

Lawlor PG, Rutkowski NA, MacDonald AR, Ansari MT, Sikora L, Momoli F, Kanji S, Wright DK, Rosenberg E, Hosie A, Pereira JL, Meagher D, Rice J, Scott J, Bush SH.

A randomised controlled pilot and feasibility study of music therapy for improving the quality of life of hospice inpatients

Porter S, McConnell T, Graham-Wisener L, Regan J, McKeown M, Kirkwood J, Clarke M, Gardner E, Dorman S, McGrillen K, Reid J.

Quality indicators for Palliative Day Services: A modified Delphi study

McCorry NK, O’Connor S, Leemans K, Coast J, Donnelly M, Finucane A, Jones L, Kernohan WG, Perkins P, Dempster M.

Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

Duggleby W, Jovel Ruiz K, Ploeg J, McAiney C, Peacock S, Nekolaichuk C, Holroyd-Leduc J, Ghosh S, Brazil K, Swindle J, Forbes D, Woodhead Lyons S, Parmar J, Kaasalainen S, Cottrell L, Paragg J.

Findings From a Thematic Synthesis of Key Messages From a Palliative Care Research Network: The KINDLE Project

Nicholson E, Murphy T, Larkin P, Normand C, Guerin S.

Evaluating an educational programme for dignity care intervention with community nurses in Ireland

Connolly M, Charnley K, Collins R, Barry C, McIlfatrick S, Larkin P, Brenner M, Johnston B.

Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives

Donnelly S, Prizeman G, Coimín DÓ, Korn B, Hynes G.

2017 Publications

Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach

Hogden A, Foley G, Henderson RD, James N, Aoun SM

Funding models in palliative care: Lessons from international experience

Groeneveld EI, Cassel JB, Bausewein C, Csikós A, Krajnik M, Ryan K, Haugen DF, Eychmueller S, Keller HG, Allan S, Hasselaar J, Merino TGB, Swetenham K, Piper K, Fürst CJ, Murtagh FEM

How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA

Selman LE, Daveson BA, Smith M, Johnston B, Ryan K, Morrison RS, Pannell C, McQuillan R, De Wolf-Linder S, Pantilat SZ, Klass L, Meier D, Normand C, Higginson IJ.

Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries

Higginson IJ, Daveson BA, Morrison RS, Yi D, Meier D, Smith M, Ryan K, McQuillan R, Johnston BM, Normand C, Bennett E, Cooper F, De Wolf-Linder S, Dzingina M, Ellis-Smith C, Evans C, Ferguson T, Henson L, Kaler P, Kane P, Klass L, Lawlor P, McCrone P, Molony S, Morrison S, Murtagh F, Pannell C, Pantilat S, Reison A, Selman L, Tobin K, Vohora R, Wei G.

Counting the cost of cancer: out-of-pocket payments made by colorectal cancer survivors

Ó Céilleachair A, Hanly P, Skally M, O’Leary E, O’Neill C, Fitzpatrick P, Kapur K, Staines A, Sharp L.

Complicated grief: Knowledge, attitudes, skills and training of mental health professionals: A systematic review

Dodd A, Guerin S, Delaney S, Dodd P.

Feeling Thanks and Saying Thanks: A Randomized Controlled Trial Examining If and How Socially Oriented Gratitude Journals Work

O’Connell BH, O’Shea D, Gallagher S.

Young Adult and Usual Adult Body Mass Index and Multiple Myeloma Risk: A Pooled Analysis in the International Multiple Myeloma Consortium (IMMC)

Birmann BM, Andreotti G, De Roos AJ, Camp NJ, Chiu BCH, Spinelli JJ, Becker N, Benhaim-Luzon V, Bhatti P, Boffetta P, Brennan P, Brown EE, Cocco P, Costas L, Cozen W, de Sanjosé S, Foretová L, Giles GG, Maynadié M, Moysich K, Nieters A, Staines A, Tricot G, Weisenburger D, Zhang Y, Baris D, Purdue MP.

Response to: Is prehabilitation limited to preoperative exercise?

Moran J, Guinan E, McCormick P, Larkin J, Mockler D, Hussey J, Moriarty J, Wilson F.

Evaluating a dignity care intervention for palliative care in the community setting: community nurses’ perspectives

McIlfatrick S, Connolly M, Collins R, Murphy T, Johnston B, Larkin P.

STOPPFrail (Screening Tool of Older Persons Prescriptions in Frail adults with limited life expectancy): consensus validation

Lavan AH, Gallagher P, Parsons C, O’Mahony D.

Nursing home manager’s knowledge, attitudes and beliefs about advance care planning for people with dementia in long-term care settings: a cross-sectional survey

Beck ER, McIlfatrick S, Hasson F, Leavey G.

If you are a member of AIIHPC PCRN or ECRF and would like to have one of your publications added to the page please contact Dr Busra Ertugrul, AIIHPC Research Support and Knowledge Translation Lead, at bertugrul@aiihpc.org.